Experiences, perspectives, and needs of patients and their close relatives

• 2008

  • Cormier, M. (2008) Perceived Needs and Adjustment Strategies in the Three Phases of the Continuum of Care from the Point of View of People with Traumatic Brain Injuries, Their Close Ones and Interveners in Bordeaux, Master’s thesis, Faculty of Nursing, Université de Montréal. (In French)
  • Gagnon, I., Swaine, B., Champagne, F., Lefebvre, H. (2008) Perspectives of adolescents and their parents regarding service needs following a mild traumatic brain injury. Brain Injury, 22(2), 161-73.
  • Lefebvre, H., Cloutier, G., Levert, M. (2008) Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Injury, 22(7), 535-43.

• 2006

  • Lefebvre, H. & Levert, M-J. (2006) Sudden and unexpected health situation: From suffering to resilience. Illness, Crisis & Loss, 14(4), 337-354.
  • Lefebvre, H., Levert, M-J., Banville, F. & Gélinas, I. (2006) Light traumatic brain injury: rehabilitation and resocialization. La revue du soignant en santé publique, 15, 28-29. (In French)

• 2005

  • Lefebvre, H., Pelchat, D., Swaine, B., Gélinas, I., & Levert, M.-J. (2005) The experiences of individuals with a traumatic brain injury, families, physicians and health professionals regarding care provided throughout the continuum. Brain Injury, 19(8), 585-597.

• 2004

  • Cicerone, K.D. (2004). Participation as an outcome of traumatic brain injury rehabilitation. Journal of Head Trauma Rehabilitation, 19(6), 494-501.
  • Kalpakjian, C.Z., Lam, C.S., Toussaint, L.L. & Merbitz, N.K. (2004). Describing quality of life and psychosocial outcomes after traumatic brain injury. American Journal of Physical Medicine & Rehabilitation. 83(4), 255-265.
  • Lefebvre, H., Pelchat, D., Swaine, B., Gélinas, I., & Levert, M.-J. (2004) Cranial-cerebral trauma after a traffic accident : perceptions of patients, family, physicians and professionals. Recherche en Soins Infirmiers, (78), 14-34. (In French)
  • O’Connell, B., & Baker, L. (2004). Managing as carers of stroke survivors: strategies from the field. International Journal of Nursing Practice, 10(3), 121-126.
  • Oppermann, J.D. (2004) Interpreting the meaning individuals ascribe to returning to work after traumatic brain injury: A qualitative approach. Brain Injury, 18(9), 941-955.

• 2003

  • Bond, A.E., Draeger, C.R., Mandleco, B., Donnelly (2003) Needs of family members of patients with severe traumatic brain injury. Critical care Nurse, 23(4), 63-72
  • Ergh, T. C., Hanks, R. A., Rapport, L. J., & Coleman, R. D. (2003). Social Support Moderates Caregiver Life Satisfaction Following Traumatic Brain Injury. Journal of Clinical and Experimental Neuropsychology, 25 (8), 1090-1101.
  • Gadoury, M. Société de l’assurance automobile du Québec (SAAQ). (2003) Traumatic brain injury: brochure intended for victims and family members. Québec: SAAQ.

• 2002

  • Man, D. W. (2002). Family caregivers’ reactions and coping for persons with brain injury. Brain injury, 16(12), 1025-1037.

• 2001

  • Degeneffe, C. E. (2001). Family Caregiving and Traumatic Brain Injury. Health & Social Work, 26(4), 257-268.
  • Kolakowsky-Hayner, S. A., Miner, K. D., & Kreutzer, J. S. (2001). Long-term life quality and family needs after traumatic brain injury. Journal of Head Trauma Rehabilitation, 16(4), 374-384.
  • Paterson, B., Kieloch, B., & Gmiterek, J. (2001). They Never Told Us Anything’ : Postdischarge Instruction for Families of Persons with Brain Injuries. Rehabilitation Nursing, 26(2), 48-53.
  • Sinnakaruppan, I. et Williams, D.M. (2001) Subject review: Family carers and the adult head-injured: a critical review of carers’ needs. Brain Injury, 15 (8), 653-672
  • Van der Smagt-Duijnstee, ME., Hamers, J.P., Abu-Saad, H.H., Zuidhof, A. (2001). Relatives of hospitalized stroke patients: their needs for information, counselling and accessibility. Journal of Advanced Nursing, 33(3), 307-315.

• 2000

  • Durgin, C. J. (2000). Increasing Community Participation after Brain Injury: Strategies for Identify and Reducing the Risks. Journal of Head Trauma Rehabilitation, 15(6), 1195-1207
  • Minnes, P., Graffi, S., Nolte, M. L., Carlson, P., & Harrick, L. (2000). Coping and stress in Canadian family caregivers of persons with traumatic brain injuries. Brain Injury, 14(8), 737-748.
  • Perlesz, A., Kinsella, G., & Crowe, S. (2000). Psychological distress and family satisfaction following traumatic brain injury: injured individuals and their primary, secondary, and tertiary carers. Journal of Head Trauma Rehabilitation, 15(3), 909-927.

• 1999

  • Hill, H. (1999) Traumtic brain injury: a view from the inside. Brain Injury, 13(11), 839-844.
  • Lakhan Ramritu, P., & Croft, G. (1999). Needs of parents of the child hospitalised with Acquired Brain Damage. International Journal of Nursing Studies, 36, 209-216.
  • Perlesz, A., Kinsella, G., & Crowe, S. (1999). Impact of traumatic brain injury on the family: A critical review. Rehabilitation Psychology, 44(1), 6-35.

• 1998

  • Koskinen, S. (1998). Quality of life 10 years after a very severe traumatic brain injury (TBI): the perspective of the injured and the closest relative. Brain injury, 12(8), 31-648.
  • Lawlor, M., & Mattingly, C. (1998). The complexities embedded in family centered care. The American Journal of Occupational Therapy, 52(4), 259-267.
  • Semlyen, J.K., Summers, S.J. & Barnes, M.P. (1998). Aspects of caregiver distress after severe head injury, Journal of Neuro Rehabilitation, 12, 53-60.

• 1997

  • Brzuzy, S. & Speziale, B.A. (1997). Persons with traumatic brain injuries and their families: living arrangements and well-being post injury, Social work in health care, 26(1), 77-88
  • Frosch, S., Gruber, A., Jones, C., Myers, S., Noel, E., Westerlund, A., & Zavisin, T. (1997). The long term effect of traumatic brain injury on the roles of care givers. Brain Injury, 11(12), 891-906.

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